Holding On To Hope

When you see this photo you may think Beckett looks sad, at first glance.But in fact, it’s quite the opposite.This is what his PEACE looks like. Today we had an appointment to begin the process of HOPEFULLY receiving an adaptive transit push chair for little man, for our outings.So we have this loaner chair to […]

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The Most Important Thing I’ve Learned

We are going on two years since Beckett was presented with the word Autism on paper.But it’s been six years in total, with Autism swirling our world. You don’t wake up one day and find yourself autistic.You don’t fall asleep counting sheep, planning your day ahead, and wake suddenly feeling your mind clustered with thoughts, […]

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Adventure, Exploration, and Every Frightening Thought In Between

You’re a fast one, Mr. Beckett. You’re silent, and stealthy, and adventurous. You love to explore, and feel, and see. And as much as your love for adventure adds to my love for you, it’s also downright terrifying. My brain swirls with these similar thoughts, from sun up to sun down: What if you get […]

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Birthday Magic And All The Feelings

My boy, my Beckett, my littlest love, Today you’re another year older. Another day wiser, cuter, faster, taller, and 6 full years of pure miracle. One day I will reminisce with you all about the challenges that you faced, from day one, coming into this world much too early. When I’m braver, and stronger, and […]

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Initiative, Progress, and Coloring Outside The Lines

This child of mine has never been a fan of coloring. You know when you (used to be able to) go to restaurants, and the host/hostess would hand you those tiny, little boxes of crayons with their children’s menu to pass time? Ya, we passed on those after awhile. They’d end up rolled under someone’s […]

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Erase The Word

Close your eyes. And just for a moment think back to the most important piece of advice you got when you were younger, on how to treat others. This is mine, and I know you’ll recognize it… We were all told that famous line as children, “if you don’t have anything nice to say, don’t […]

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What We Stand to Lose

We have seen much brighter days, friends. Our previous week started with our sweet Beckett, out of the blue, looking like he was going to “toss his cookies” during a short car ride. His adventurous, silly, playful demeanor disappeared, and a sad, quiet, still, slightly pale imposter emerged.Some kind of tummy bug must have overtaken […]

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We are better together

I get asked on quite a consistent basis what the most challenging part of each day is. And to be quite honest, it has nothing much to do with behaviors stemming from special needs specifically. It isn’t really the sleepless nights, or even the sudden nonverbal communication. It’s not about a specific characteristic or challenge […]

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Age: Quite Literally Just A Number

Today I find myself decluttering. It usually makes me feel quite a bit better, when I’m in one of those random “funks”. But if nothing else, today’s chore left me feeling more gloomy than anything. I first tackled the hall closets, our makeshift office in the spare bedroom, and then turned my attention to Beckett’s […]

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A Thanksgiving To Never Forget

To some these photos may look less like Thanksgiving and more like a “game night”. Today, these are our chosen festive plans. Today the calendar reads “Thanksgiving” and we are doing just that. We had (burnt) pizza for our meal, instead of the traditional American turkey spread with all the trimmings. And yet we are […]

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