Holding On To Hope
When you see this photo you may think Beckett looks sad, at first glance.But in fact, it’s quite the opposite.This is what his PEACE looks like.Today we had an appointment to begin the process of HOPEFULLY receiving an adaptive transit push chair for little man, for our outings.So we have this loaner chair to test…
Read MoreThe Most Important Thing I’ve Learned
We are going on two years since Beckett was presented with the word Autism on paper.But it’s been six years in total, with Autism swirling our world.You don’t wake up one day and find yourself autistic.You don’t fall asleep counting sheep, planning your day ahead, and wake suddenly feeling your mind clustered with thoughts, and…
Read MoreEveryone In The World Needs Someone Just Like You
They said, “your son has the highest needs of anyone in the school”. And as a mother, what I heard was, “your son is the most challenging child we have”. Like an almost “admission of irritation” on their part. Or so it felt. That statement wasn’t necessary. In a meeting that I called; me, myself,…
Read MoreAdventure, Exploration, and Every Frightening Thought In Between
You’re a fast one, Mr. Beckett. You’re silent, and stealthy, and adventurous. You love to explore, and feel, and see. And as much as your love for adventure adds to my love for you, it’s also downright terrifying. My brain swirls with these similar thoughts, from sun up to sun down: What if you get…
Read MoreAdvocacy – Until all are SEEN and LOVED
Never give up.MAKE THEM see you.Never change who you are simply for “a pass” from others…Just a few of the many things I will teach my son, day in and day out, until I’m blue in the face. The thing about advocacy friends, is that it can be messy, and loud, and can be “in…
Read MoreBirthday Magic And All The Feelings
My boy, my Beckett, my littlest love, Today you’re another year older. Another day wiser, cuter, faster, taller, and 6 full years of pure miracle. One day I will reminisce with you all about the challenges that you faced, from day one, coming into this world much too early. When I’m braver, and stronger, and…
Read MoreInitiative, Progress, and Coloring Outside The Lines
This child of mine has never been a fan of coloring. You know when you (used to be able to) go to restaurants, and the host/hostess would hand you those tiny, little boxes of crayons with their children’s menu to pass time? Ya, we passed on those after awhile. They’d end up rolled under someone’s…
Read MoreErase The Word
Close your eyes. And just for a moment think back to the most important piece of advice you got when you were younger, on how to treat others. This is mine, and I know you’ll recognize it… We were all told that famous line as children, “if you don’t have anything nice to say, don’t…
Read MorePerspective: Served Hot And Fresh Daily
One of the most powerful parenting quotes I’ve ever heard is as follows: “Your child isn’t GIVING you a hard time; Your child is HAVING a hard time”. And it pulls the air out of me every time I hear it. We are an open book; transparent, honest, and real.And we always will be. And…
Read MoreWhat We Stand to Lose
We have seen much brighter days, friends. Our previous week started with our sweet Beckett, out of the blue, looking like he was going to “toss his cookies” during a short car ride. His adventurous, silly, playful demeanor disappeared, and a sad, quiet, still, slightly pale imposter emerged.Some kind of tummy bug must have overtaken…
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To Infinity & Beyond Words 